Tag Archives: Eleonore Pauwels

Patent Politics: a June 23, 2017 book launch at the Wilson Center (Washington, DC)

I received a June 12, 2017 notice (via email) from the Wilson Center (also know as the Woodrow Wilson Center for International Scholars) about a book examining patents and policies in the United States and in Europe and its upcoming launch,

Patent Politics: Life Forms, Markets, and the Public Interest in the United States and Europe

Over the past thirty years, the world’s patent systems have experienced pressure from civil society like never before. From farmers to patient advocates, new voices are arguing that patents impact public health, economic inequality, morality—and democracy. These challenges, to domains that we usually consider technical and legal, may seem surprising. But in Patent Politics, Shobita Parthasarathy argues that patent systems have always been deeply political and social.

To demonstrate this, Parthasarathy takes readers through a particularly fierce and prolonged set of controversies over patents on life forms linked to important advances in biology and agriculture and potentially life-saving medicines. Comparing battles over patents on animals, human embryonic stem cells, human genes, and plants in the United States and Europe, she shows how political culture, ideology, and history shape patent system politics. Clashes over whose voices and which values matter in the patent system, as well as what counts as knowledge and whose expertise is important, look quite different in these two places. And through these debates, the United States and Europe are developing very different approaches to patent and innovation governance. Not just the first comprehensive look at the controversies swirling around biotechnology patents, Patent Politics is also the first in-depth analysis of the political underpinnings and implications of modern patent systems, and provides a timely analysis of how we can reform these systems around the world to maximize the public interest.

Join us on June 23 [2017] from 4-6 pm [elsewhere the time is listed at 4-7 pm] for a discussion on the role of the patent system in governing emerging technologies, on the launch of Shobita Parthasarathy’s Patent Politics: Life Forms, Markets, and the Public Interest in the United States and Europe (University of Chicago Press, 2017).

You can find more information such as this on the Patent Politics event page,

Speakers

Keynote


  • Shobita Parthasarathy

    Fellow
    Associate Professor of Public Policy and Women’s Studies, and Director of the Science, Technology, and Public Policy Program, at University of Michigan

Moderator


  • Eleonore Pauwels

    Senior Program Associate and Director of Biology Collectives, Science and Technology Innovation Program
    Formerly European Commission, Directorate-General for Research and Technological Development, Directorate on Science, Economy and Society

Panelists


  • Daniel Sarewitz

    Co-Director, Consortium for Science, Policy & Outcomes Professor of Science and Society, School for the Future of Innovation in Society

  • Richard Harris

    Award-Winning Journalist National Public Radio Author of “Rigor Mortis: How Sloppy Science Creates Worthless Cures, Crushes Hope, and Wastes Billions”

For those who cannot attend in person, there will be a live webcast. If you can be there in person, you can RSVP here (Note: The time frame for the event is listed in some places as 4-7 pm.) I cannot find any reason for the time frame disparity. My best guess is that the discussion is scheduled for two hours with a one hour reception afterwards for those who can attend in person.

Stranger Visions at Woodrow Wilson International Center for Scholars June 3, 2013 in Washington, DC

I got a notice from the Woodrow Wilson International Center for Scholars Science and Technology Innovation Program about an art/science presentation taking place on June 3, 2013 in Washington, DC. From their May 30, 2013 announcement,

Stranger Visions: The DNA You Leave Behind

Heather Dewey-Hagborg is an information artist who is interested in exploring art as research and public inquiry. In her recent project Stranger Visions she creates literal figurative portrait sculptures from analyses of genetic material collected in public places. Working with the traces strangers unwittingly leave behind, Dewey-Hagborg calls attention to the impulse toward genetic determinism and the potential for a culture of genetic surveillance. The project raises questions about the DNA we leave behind, privacy, and numerous legal and bioethical issues.

Designed as a provocation, Stranger Visions has been featured in the international news media, including Smithsonian, CNN, the New York Times, and National Public Radio.

In this exhibit and policy discussion, Dewey-Hagborg will discuss her process and progress on Stranger Visions. She will join Professor Sonia Suter of the George Washington University Law School and Dr. Todd Kuiken and Eleonore Pauwels of the Synthetic Biology Project  in a discussion and public Q&A about the bioethical, legal, and policy dimensions of the work.

You must register to attend the event. No RSVP is required to view the webcast.

Click here to RSVP. [If you are attending in person; viewing the webcast does not require an RSVP]

*** Webcast LIVE at [http://www.wilsoncenter.org/event/stranger-visions-the-dna-you-leave-behind]***

 

What: Stranger Visions: The DNA You Leave Behind

When: June 3, 2013 from 3:00 p.m. – 5:00 p.m.

Who:Heather Dewey-Hagborg, Information Artist and Ph.D. Candidate at Rensselaer Polytechnic Institute; Professor Sonia M. Suter, George Washington University Law SchoolNancy J. Kelley, JD, MPP; Founding Executive Director of the New York Genome Center; a representative from the FBI is tentatively scheduled to discuss their methods and protocols surrounding DNA collectionand analysis.

Dr. Todd Kuiken and Eleonore Pauwels of the Synthetic Biology Project will moderate the session.

Where: Woodrow Wilson International Center for Scholars

6th Floor Board Room

Ronald Reagan Building

1300 Pennsylvania Ave NW

Washington, D.C.

For directions, visit: http://www.wilsoncenter.org/directions

To learn more about the Synthetic Biology Project, visit: http://www.synbioproject.org/about/

It was not immediately apparent to me that this event is being held as part of the Center’s Synthetic Biology Project event series. Interesting approach to bioethical and other issues.

ETA June 3, 2013: Eleanore Pauwels, one of the Wilson Center researchers on the panel, wrote a May 31, 2013 commentary on some of the issues raised by Dewey-Hagborg’s work on Slate.com (Note: Links have been removed),

… Heather Dewey-Hagborg, a 30-year-old Ph.D. student studying electronic arts at Rensselaer Polytechnic Institute in Troy, N.Y., has the weird habit of gathering the DNA people leave behind, from cigarette butts and fingernails to used coffee cups and chewing gum. She comes to Genspace to extract DNA from the detritus she collects and sequence specific genomic regions from her samples. The data are then fed into a computer program, which churns out a facial model of the person who left the hair, fingernail, cigarette, or gum behind. Using a 3-D printer, she creates life-sized masks that offer a depiction of what the anonymous DNA donor might look like. And they may be coming to a gallery wall near you, with a show at the New York Public Library slated for early 2014.

Such a process might seem artistically cutting edge to some. But, for most of us, the “Yuck!” factor kicks in quickly. Whether you find it cool or creepy, though, this DNA-profiling experiment raises a number of legal and ethical questions that no one knows how to handle. To what degree does the DNA we leave behind in public spaces belong to us? Does a facial mask without a name raise the same issues as a photo? In either case, what exactly is our expectation of privacy?

Just because an individual sheds DNA in a public space does not mean that he or she does not care about preserving the privacy of the genetic material. There was no informed consent given to access that data. On the other hand, some might say the major problem is not unauthorized access to data but misuse of data. It is easy to imagine a scenario in which someone sequences the genome of an acquaintance (or rival) who left a cigarette behind. If the person who tested the cigarette found a risk gene for a mental disorder and posted the results on Facebook with the smoker’s name, the information could affect his social and professional life.

…  To what extent do genetic traits (such as ancestry) tell you about how a person looks? Based on the analysis of these genetic traits, how accurate is the 3-D facial model produced by the computer? At the request of a Delaware forensic practice, Dewey-Hagborg has been working on a sculpture from a DNA sample to identify the remains of an unidentified woman. This opens another black box at the connection between law enforcement and what we might call “DIY forensic science”: Here, what is the role of the state versus that of the individual?

I recommend reading the commentary in its entirety. As for the questions Pauwels raises, I’m wondering how I’d feel if I saw a mask that l00ked like me at the New York Public Library in 2014. Of course, that begs the next question, would I recognize myself?